Ten Things I wish Were True

1) Every child with a disability who is entitled by law to receive a free and appropriate public education (FAPE), receives one. This was not true when I was raising my kids. I heard stories at conferences, at advisory committees, legislative comment sessions, and on the internet. In this era of public school destruction, I fear the situation is even worse. Federal Law mandates FAPE, but with the reduction in funding and the systematic destruction of our public schools due to corporate interference, I’m afraid FAPE is much more likely to be denied.

2) “Your kids will always have a job because of their disability.” The person who said this to me felt that her kids (brilliant) were at a disadvantage because they didn’t have special job protection under the law (discrimination protected status supposedly given to special classes of individuals due to race, disability, and sex). The unemployment rate of people with autism is above 50%. My oldest daughter diligently searched for full time employment for four years after graduation from college.

3) I wish the liquid asset limit for SSI was raised. The amount for an individual is still at $2,000 and for a couple it is $3,000. This is not enough money to save to move to an apartment, or for emergencies that may come up, such as a major car or home repair.

4) Every parent of a child with disabilities had a mentor, a coach, a village of helpers.

5) There was a cure for children with autism who have major impairments.

6) Employers would give high functioning adults a chance. And if the first or second person doesn’t work out, keep giving a chance to someone else until they find the one who fits. I know this is asking a lot.

7) Those who look down on our parenting skills would spend a day in an autism parenting immersion experience.

8) Immunizations really did cause autism. Then autism could be eradicated within a generation. Instead there are worse things which can be attributed to a lack of vaccines, such as infant death by whooping cough, death by lockjaw, heart disease caused by measles (my mother), etc. The causes of autism appear to be numerous.

9) Every person with autism would have a circle of friends. In high school.

10) Every family affected by autism would have a fabulous vacation at some point in the journey.

How about you? What would be on your wish list?




2 thoughts on “Ten Things I wish Were True

  1. Hmm, considering how I struggled and a public university yet other friends with my disability were well taken care of at their private universities, perhaps I would add that I wish public universities were just as caring and accommodating as private universities!

    Liked by 1 person

  2. I agree with you. I encouraged my kids to go to a private university in town, but I took them from home to college five days a week. From a financial aid standpoint, it cost less to send them to a private university in town than to the public university near town, which offered only loans to our kids, even though the younger two graduated at the top of their classes. My oldest daughter went to community college first, and they were quite accommodating. Then to a small business college near town. This university was also very helpful (Davenport University). I think smaller is better when it comes to disability.

    Personally, I went to a very large university (Michigan State University). That’s one of the reasons I didn’t want my kids going there. It’s so easy to get lost. Students are just a number.

    Like

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